Mother, interrupted: CPS accused her of everything from neglect to excessive care, never proved anything, and took her daughter anyway

Dunlavy was horrified.

"I didn't want the PEG in my child," she says. "I wanted to try everything else, I wanted [a more intense] feeding therapy program."

In an effort to avoid the tube, Sarah underwent minor surgery in early September that clipped the skin underneath her tongue. Before the surgery, it extended farther than normal, restricting her tongue's motion. The clip was performed by Dr. John Raines, who noted he didn't think it would help her gain weight and suggested Dunlavy talk to a friend of his, gastroenterologist Mitchell Shub at Phoenix Children's Hospital.

Dunlavy visited Shub on September 26 to talk about the feeding tube. She was still hoping to avoid it, but Shub thought Sarah was a good candidate for the PEG.

In his report, Shub writes, "I believe that placement of a percutaneous gastronomy feeding tube would be helpful in maintaining good nutritional support."

He spent 75 minutes urging Dunlavy to agree and suggested the child could be evaluated as an inpatient first. She remained unconvinced but agreed that an evaluation might be a good idea.

The report was sent to Sarah's pediatrician, Kevin Berger.

The family was new to Berger's office. Dunlavy had switched primary-care physicians in August because she'd heard he had a good reputation working with DDD clients. She was hoping he'd be able to guide her through Sarah's difficulties and help her get things like Pediasure — one of the child's main sources of nutrition — paid for through her insurance. They met for the one and only time at a new patient evaluation.

Dunlavy liked Berger. She describes it as a basic appointment. Sarah sang her ABCs and pointed out colors on the wall.

"He didn't give me any impression he thought there was something wrong," Dunlavy says. She briefed him on her daughter's medical history and he noticed Sarah had pinkeye. (Dunlavy hadn't see it because pinkeye can be difficult to detect.) He prescribed eye drops and the appointment was over in 20 minutes.

Dunlavy had no further contact with his office until October 10, when two of her daughter's therapists at Scottsdale Fiesta Pediatric Therapy noticed something unusual. Several times during the session, Sarah stopped what she was doing, stuck her arms out, and shook for about 10 seconds.

They reported what they called "shuddering spells" to Dunlavy, who wasn't in the room during the session, and suggested she have her daughter checked by a neurologist.

Dunlavy called Berger's office and left a message for him. Later that day she was told to bring Sarah to Phoenix Children's Hospital, where she would be evaluated for both the shuddering spells and also her feeding issues, as Shub had suggested at their consultation.

She followed their instructions, but she had no idea what was going on behind the scenes. Between her first phone call and Sarah's arrival at the hospital, Berger called Phoenix Children's and made a very serious allegation.

He wanted the hospital to evaluate Dunlavy for Munchausen Syndrome by Proxy, though the note made in Sarah's medical records does not say why.

(Interestingly, the two therapists who first noticed the shudders — and who had been treating Sarah for more than six months, at that point — were never consulted when the MSBP diagnosis was made. Not by the doctors at Phoenix Children's Hospital, and not by CPS.)

Twelve days later, Dunlavy lost her daughter.

She never suspected a thing, but Carol Dunlavy and Sarah were under constant surveillance at Phoenix Children's Hospital.

The hospital would not comment on her case, nor would it answer questions about Munchausen Syndrome by Proxy. Debra Stevens, a spokeswoman for the hospital, did say the hospital has a zero tolerance policy when it comes to child abuse.

In Dunlavy's situation, it's difficult to determine from the records exactly what she was doing wrong.

The accusations made against her by CPS claim she wanted to expose her daughter to unnecessary medical procedures, like the feeding tube.

But Dunlavy made it clear she didn't want the surgery for her daughter from the moment it was brought up, a fact documented in reports from both GI surgeons she visited and the admitting physician at PCH who wrote, "Mom says she would rather not see her child get a PEG tube."

Yet on October 26, forensic pediatrician Jennifer Geyer wrote a report recommending the child's removal and accusing Dunlavy of pushing for the tube.

"I am concerned that [the child] may have progressed to surgery if there had been no intervention," she wrote, despite a report written only one month earlier from a GI doctor at the same hospital stating otherwise.

The doctors at PCH also accused Dunlavy of lying about seizures in her child. While Sarah was admitted to find out what caused the shudders observed by her therapists, the admitting documents show Dunlavy never said the word seizure. She still just calls them "shudders."

The hospital found no evidence of epileptic activity, though it did record two shuddering episodes, which have never been explained.

Because Sarah was hooked up to an EEG, to monitor her brain activity and detect seizures, the room was under video surveillance — though notes show this was used more to watch Dunlavy than to monitor the child.